Williams syndrome (WS) is not a disease. It cannot be caught and it cannot be cured. It's something that is uniquely part of the individual. The characteristics and medical issues that present themselves in WS are directly related to a set of missing genes on the 7th chromosome.
Even though raising a child with Williams syndrome may have certain challenges, most children with WS have wonderful, social, friendly, and endearing personalities. As adults, these amazing people often volunteer in the communities, making them a valuable asset to society at large.
Here are some stories of children and adults with Williams syndrome. If you have a story you'd like to share with your experience of Williams syndrome, please contact us.
Jan 2014 | There's that wide grin that startled me in the beginning. Now, it melts my heart. It's true that she doesn't look just like me, but I can't imagine her looking any other way. Emmy is who she is, not who I am. Though, I'm told she'll develop much more of a family resemblance as she grows older. Everyone already says that she looks just like my husband.Full story
Apr 2011 | Jessica's daughter, Isabelle, has Williams syndrome, a genetic disorder with a number of symptoms. Children with Williams are often physically small and frequently have developmental delays. But also, kids and adults with Williams love people, and they are literally pathologically trusting. They have no social fear.Full story